Kate experiences abdominal pain and nausea from the menstruation cycle starting, barb gave her Tylenol at 7:30am. No breakfast, went late to school once the Tylenol kicked in.
Update: 11am school called, nausea returned from menstrual cycle, I brought her home from school at her request at 11am.placeholder://
Sunday Nov 3,
9am .25mg Clonazipam given
8pm 2 seizures before bed
– no clonazepam
12 midnight:
– Kate woke up, tired but unable to sleep, no discomfort or abdominal pain, no visible seizures
– no Clonazipam given
Morning of October 31:
after sleeping through the night Kate had a series of seizures before breakfast (7:10am) that made her feel as if she needed to vomit, required Clonazepam to break the cycle: .125mg given ( 1/2 the regular dose )
Night of October 31
Kate woke up at 2 am, went back to sleep around 3:30 am.
no medication given
Sunday Night October 27:
Kate woke up at 11:40 pm, went back to sleep after being up for 30 min.
She woke up again at 3:00 am, she grabbed barbs arm said the seizure was “a bad one”, the seizures continued, Barb gave her half a Clonazipam tablet (.25mg)
Clonazipam .25mg
Monday afternoon October 28:
After school, Kate had a series of seizures ( not the ones that maker her feel like vomiting ), she layed on the sofa and watched TV until her piano lesson at 5pm. She did well piano
Conazipam .125mg
Saturday night Oct. 26
Woke up at 3:30, awake for 1.5 hours. No seizures reported but “just can’t stay asleep”
No medicine given
Slept in pat 9am the following morning
Kate is awake again tonight, unable to sleep through the night. Our assumption is that seizures are casing her to wake up now as they did prior to her 2015 hemispherotomy.
Kate woke us up after having a series of seizures that give her the sense of needing the vomit.
We gave her the rescue medicine to break the continued cycle of seizures.
Clonazipam.5mg
3:30am till 4:30
Kate has been awake the last two nights with seizures and this morning they intensified in frequency and severity. When she is awake over night it is typically for several hours between 11pm and 5 pm. Last night she went back to sleep after receiving the Clonazipam to break the seizure cycle.
We clobbered her with the “rescue” medicine this morning again to break the recurring cycle.
She was so upset about missing school today, I promised her if she went one hour without any seizures I would bring her to school.
The rescue med is a heavy neuro sedative,
now she is a happy little “drunk” 4th grader
We were so lucky to see a friendly face first thing at Muldown Elementary and be greeted with some silliness to start the day. Thank you Christina, you are an all star.
Progress on the VW & Mercedes Benz mash up last week. Josh Sorenson of ‘Sorenson Auto Body’ wrapped up the seat rail bracket fabrication on Tuesday, having it painted and bolted in Wednesday gave me the chance to debut the van to family and guests on Thanksgiving day. Tradition dictates that we load up family and friends for a trip into the Stillwater National Forest to harvest a Christmas tree the day after Thanksgiving. The 4×4 mobil base camp is taking shape.
Next steps involve adjusting the rials forward in the van, adding a stand alone diesel heater, ski storage boxes in the back, bike mounts, re-install the vinyl floor and insulation, sleeping solution for two people, custom lower wall panels to accommodate the needs of the back seat passengers, LED lighting, USB plugs, sub woofer etc…
Getting prepped on this side of the Atlantic for the auto chop shop Polish seat mafia Mercedes Benz + VW mashup make over… secured a heated enclosed machine shop stall in a local warehouse for next month. It’s all coming together, UPS left a giant roll of automotive Thinsulate on my porch last night, while everything is torn apart for the seat swap, i’ll add the Thinsulate in the walls and ceiling for sound and temperature upgrade.
