Barb and Kate traveled to Mayo today for a three to five day EEG / Video study.
Kate has been getting throttled pretty hard since the first week of October with increased frequency and intensity of seizures.
We have run out of knowledge for how to address the daily seizures. The “rescue medicine” that we previously used once or twice a year has become a daily need. It’s no longer a rescue but rather a base line control.
This week in Rochester MN, we hope to learn more about the nature and origin of the seizures Kate is having. This knowledge will guide the creation of a new course of care for seizure management.